Bibliograph

Sharing linked data for health research, toward better decision making, edited by Carolyn Adams, Judy Allen, Felicity Flack

Type

Label

Sharing linked data for health research, toward better decision making, edited by Carolyn Adams, Judy Allen, Felicity Flack

Language

eng

Index

index present

Literary Form

non fiction

Main title

Sharing linked data for health research

Medium

electronic resource

Nature of contents

dictionaries

Oclc number

1322487681

Responsibility statement

edited by Carolyn Adams, Judy Allen, Felicity Flack

Series statement

Cambridge bioethics and lawCambridge Social Sciences eBooks

Sub title

toward better decision making

Summary

Health research around the world relies on access to data, and much of the most valuable, reliable, and comprehensive data collections are held by governments. These collections, which contain data on whole populations, are a powerful tool in the hands of researchers, especially when they are linked and analyzed, and can help to address "wicked problems" in health and emerging global threats such as COVID-19. At the same time, these data collections contain sensitive information that must only be used in ways that respect the values, interests, and rights of individuals and their communities. Sharing Linked Data for Health Research provides a template for allowing research access to government data collections in a regulatory environment designed to build social license while supporting the research enterprise.--, Provided by publisher

Table Of Contents

Introduction -- Research using linked data -- Individual, collective, and public interests -- Social licence -- Human rights -- Research ethics -- Law -- Existing practice and processes -- Better practice and processes

Contributor

Subject

Content