European University Institute Library

Protecting genetic privacy in biobanking through data protection law, Dara Hallinan

Label
Protecting genetic privacy in biobanking through data protection law, Dara Hallinan
Language
eng
Bibliography note
Includes bibliographical references and index
Index
index present
Literary Form
non fiction
Main title
Protecting genetic privacy in biobanking through data protection law
Medium
electronic resource
Nature of contents
bibliographydictionaries
Responsibility statement
Dara Hallinan
Series statement
Oxford scholarship online.
Summary
Biobanks are critical infrastructure for medical research but they are also the subject of considerable ethical and legal uncertainty. Given that biobanks process large quantities of genomic data, questions have emerged as to how genetic privacy should be protected. What types of genetic privacy rights and rights holders should be protected and to what extent? Since 25th May 2018 the General Data Protection Regulation (GDPR) has applied and now occupies a key position in the European legal framework for the regulation of biobanking. This book takes an in-depth look at the function, problems, and opportunities presented by European data protection law under the GDPR as a framework for the protection of genetic privacy in biobanking in Europe.--, Provided by publisher
Target audience
specialized