Coverart for item
The Resource Genetics, disability and the law : towards an EU legal framework, Aisling de Paor, (electronic resource)

Genetics, disability and the law : towards an EU legal framework, Aisling de Paor, (electronic resource)

Label
Genetics, disability and the law : towards an EU legal framework
Title
Genetics, disability and the law
Title remainder
towards an EU legal framework
Statement of responsibility
Aisling de Paor
Creator
Contributor
Subject
Language
eng
Summary
While advances in science and technology bring many advantages, we must not ignore the harm that they can cause. Rapid changes in genetic testing are a prime example, and indicators can now help to detect, address and treat diseases. However, in this new study, Aisling de Paor examines how genetic testing is also being used for non-medical reasons, for example for work opportunities and insurance coverage. Genetics, Disability and the Law is the first book of its kind to substantively consider an EU-level response to the use of genetic information. de Paor discusses how to help genetic and scientific research to evolve and grow, how to enhance public confidence in research, and how to control it so that it recognises our values and fundamental human rights. An understudied but vitally important topic, de Paor's work provides a valuable and timely contribution to the field of disability rights.--
Member of
Assigning source
Provided by Publisher
Cataloging source
NhCcYBP
http://library.link/vocab/creatorName
De Paor, Aisling
Index
index present
Literary form
non fiction
Nature of contents
  • dictionaries
  • bibliography
http://library.link/vocab/relatedWorkOrContributorName
Cambridge University Press
Series statement
  • Cambridge disability law and policy series
  • Cambridge books online
http://library.link/vocab/subjectName
Genetics
Label
Genetics, disability and the law : towards an EU legal framework, Aisling de Paor, (electronic resource)
Link
https://eui.idm.oclc.org/login?url=https://doi.org/10.1017/9781316412336
Instantiates
Publication
Antecedent source
unknown
Bibliography note
Includes bibliographical references and index
Carrier category
online resource
Carrier category code
  • cr
Carrier MARC source
rdacarrier
Color
multicolored
Content category
text
Content type code
  • txt
Content type MARC source
rdacontent
Contents
Part I New Science and Technology and the Arising Ethical and Legal Issues; 2 Advancing Genetic Science and New Technologies; 3 Ethical Issues, Legal Issues and Public Policy Concerns in a New Genomic Era; 4 A Disability Framework-The Interface of the Social Model of Disability with the Evolution of Genetic Science; Part II The Imperative for Regulation and the Choice of Regulatory Theory and Frameworks; 5 Mode of Regulation and Choice of Regulatory Frameworks in Legal Theory; 6 Framings from International Human Rights Law; 7 Evolving Comparative Law Benchmarks; Part III The European Perspective; 8 Human Rights Norms in the Council of Europe and the Regulation of Genetic Information; 9 The European Union and Protection of Genetic Information; Part IV - Building the Case for a European Union Regulatory Framework; 10 National-Level Approaches – A Patchwork of Protections; 11 Building a Case for European Union Legislative Action; 12 Conclusion: Where Next for the European Union?
Control code
ybp14877670
Dimensions
unknown
Extent
1 online resource.
File format
unknown
Form of item
online
Governing access note
Use of this electronic resource may be governed by a license agreement which restricts use to the European University Institute community. Each user is responsible for limiting use to individual, non-commercial purposes, without systematically downloading, distributing, or retaining substantial portions of information, provided that all copyright and other proprietary notices contained on the materials are retained. The use of software, including scripts, agents, or robots, is generally prohibited and may result in the loss of access to these resources for the entire European University Institute community
Isbn
9781316412336
Level of compression
unknown
Media category
computer
Media MARC source
rdamedia
Media type code
  • c
Quality assurance targets
not applicable
Reformatting quality
unknown
Sound
unknown sound
Specific material designation
remote
System control number
(OCoLC)1004225367
Label
Genetics, disability and the law : towards an EU legal framework, Aisling de Paor, (electronic resource)
Link
https://eui.idm.oclc.org/login?url=https://doi.org/10.1017/9781316412336
Publication
Antecedent source
unknown
Bibliography note
Includes bibliographical references and index
Carrier category
online resource
Carrier category code
  • cr
Carrier MARC source
rdacarrier
Color
multicolored
Content category
text
Content type code
  • txt
Content type MARC source
rdacontent
Contents
Part I New Science and Technology and the Arising Ethical and Legal Issues; 2 Advancing Genetic Science and New Technologies; 3 Ethical Issues, Legal Issues and Public Policy Concerns in a New Genomic Era; 4 A Disability Framework-The Interface of the Social Model of Disability with the Evolution of Genetic Science; Part II The Imperative for Regulation and the Choice of Regulatory Theory and Frameworks; 5 Mode of Regulation and Choice of Regulatory Frameworks in Legal Theory; 6 Framings from International Human Rights Law; 7 Evolving Comparative Law Benchmarks; Part III The European Perspective; 8 Human Rights Norms in the Council of Europe and the Regulation of Genetic Information; 9 The European Union and Protection of Genetic Information; Part IV - Building the Case for a European Union Regulatory Framework; 10 National-Level Approaches – A Patchwork of Protections; 11 Building a Case for European Union Legislative Action; 12 Conclusion: Where Next for the European Union?
Control code
ybp14877670
Dimensions
unknown
Extent
1 online resource.
File format
unknown
Form of item
online
Governing access note
Use of this electronic resource may be governed by a license agreement which restricts use to the European University Institute community. Each user is responsible for limiting use to individual, non-commercial purposes, without systematically downloading, distributing, or retaining substantial portions of information, provided that all copyright and other proprietary notices contained on the materials are retained. The use of software, including scripts, agents, or robots, is generally prohibited and may result in the loss of access to these resources for the entire European University Institute community
Isbn
9781316412336
Level of compression
unknown
Media category
computer
Media MARC source
rdamedia
Media type code
  • c
Quality assurance targets
not applicable
Reformatting quality
unknown
Sound
unknown sound
Specific material designation
remote
System control number
(OCoLC)1004225367

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